Imagine your mother has cancer. You just heard about a promising new experimental treatment and want to enroll her in the study. However, your mother immigrated to the U.S. as an adult and speaks limited English. When you reach out to the research team, they tell you she is ineligible because they are recruiting only English speakers.
Unfortunately, this is an all too likely outcome of a scenario like this, because non-English speakers are frequently excluded from clinical trials and research studies in the U.S.
Despite efforts to increase research participation, racial and ethnic minorities remain underrepresented in results. A review of 5,008 papers in three pediatric journals from 2012 to 2021 revealed that only 9% of these studies included non-English speaking volunteers.
Language is a key barrier to participation, as even those with some English proficiency are less likely to participate in studies when recruitment materials aren’t in their native language. Language barriers also hinder a person’s ability to provide informed consent to participate.
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